It’s been almost two months since I’ve been diagnosed with fibro and sharing hasn’t been an issue. I posted here within a few days of the diagnosis and I shared it at work. At the time, I was missing work here and there and figured I should let them know why.
And I post here about it once a week.
After all, I’m a dude with Fibro. Not many of my people can say that, so I figured I should.
So you’d think I’d be past figuring out what to share, but I’m not.
Most of the information around the Interwebs is by people whose lives are significantly reduced by this condition. I’m in a few Facebook groups and very few of the posts are about how great life is in spite of everything. They’re hurting and looking for help. In many cases, their relationships and jobs have been diminished. Some are confined to a life that’s barely an existence.
That last thing I want to do is crap on those peoples’ experience.
That said, maybe it’s time to tell the other side of the story.
Since I got a little more serious about things, I’ve lost nine to ten pounds, depending on the day. (I only have fifty more to go.) My diet is cleaner. I’ve start cooking things so I can enjoy things I’ve avoided because of the crap that’s added when you don’t make it yourself. And I still manage to have a beer every now and again.
Finally, I’ve started walking, and then running again. I haven’t made up all the ground I’ve lost since things started to go sideways, but I’m closer. I’ve covered at least five miles (walking or running and walking) ten days in a row and at least four miles for eighteen days in a row. Since I started keeping track on Valentine’s Day, I’ve covered more than 200 miles. That’s just the start of what’s going to happen.
I’ve posted to this blog every day and submitted a couple short stories I really like to a writing contest. I’m working on first revisions to the most ambitious novel I’ve ever attempted to write.
In short, I’m doing what I can do to move forward anyway. Screw Fibro. It crushes other peoples’ lives and it may eventually do the same from me. Until then, I’m gonna continue kicking its ass. I want to run a 10K this fall8 and a half marathon over the winter. And I still want to run a marathon.
In the meantime, I intend to live my life in a way that minimizes Fibro’s impact to my life.
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Update: I ran 6.5 miles this morning. That’s a 10K, baby. Now I’m scoping out half marathons for the fall, because why not? All of this is obviously day-to-day. I could wake up tomorrow and crash to the worst days of 2015, so I’ll take every day I can get and just kick the living crap out of it.
Food Update: Didn’t make anything new or exciting this week. Just the yogurt and granola, but we’re having turkey chili tonight and hoping that’s good.
Things I could do better:
- I’ve been backsliding on the food, so I need to behave myself the next few days and re-establish some good habits. That’s vital if I want to continue.
- I’ve done very little yoga and no meditating. I need to build that into daily life. My mindset’s been slipping a bit lately.
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- Creative pursuits and how they help cope with fibromyalgia — It’s important to build the best life you can given the circumstances. Vital, even.
- 6 Things Lady Gaga Said about Fibromyalgia — She’s been quite open about her struggle with chronic pain. And she jumped off the top of a stadium, so…
- What Doesn’t Kill You Makes You Stronger — One person’s experience with pushing her exercise routine in spite of her Fibro
- Fibromyalgia and touch — I haven’t had an experience where touch was uncomfortable, but on some bad days, I’ve had a touch longer, as if I still felt the touch after it was gone. It was a little freaky.
- Fibromyalgia and throat pain — Because the current set of symptoms aren’t quite enough.
- Yoga for Stress — A calming yoga session